Saturday, September 1, 2012
Chiari Malformation Awareness
Ashlyn had brain surgery 5 months ago to help open her skull and remove her top vertebrae to make more room for her brain. I remember our time spent at Duke Children's Hospital all too well. I remember the doctors and the nurses who cared for Ashlyn, I remember Ashlyn's swollen face, screams of pain and tender incision in the back of her head. I remember the sleepless nights, I remember crying out to God.
It was a tough journey, but Ashlyn has made GREAT strides!! We choose to focus on the positive, on her reaching new milestones, her laughter, and her developing personality.
CHIARI will forever be a part of our vocabulary and our life now, as it is INCURABLE, but that won't stop Ashlyn! She is our little miracle.