Sunday, March 11, 2012

Preparing for Chiari Decompression Sugery

The reality of Ashlyn's brain surgery is becoming just that, more of a reality. Her surgery date is exactly a month away and we've been trying to prepare ourselves as much as we can (if that is even possible).

I like to be prepared, as opposed to facing the "unknown." At this point, I am trying to brace myself for what Ashlyn will look like after surgery. I've been watching YouTube videos of kids as they recover from Chiari Decompression surgery.

I know I will feel helpless.

We've been trying to get video footage of Ashlyn so we can remember her "pre" surgery characteristics that make Ashlyn, Ashlyn.

I don't know if I will ever be "ready," but ready or not, it is happening.

2 comments:

Wife, Mom, Daughter, Friend said...

Jamie-

Hi. Thanks for your encouraging comment. I would love to talk more and hear more about your daughters Chiari Malformation as our son has one too.

We will be praying for you and your family.

Thanks!

lace1070 said...

So happy to hear that Ashlyn will be getting some relief from the pain soon. Sounds like you have found a good and confident surgeon that you trust. As a chiarian myself, I could never be fully 'prepared' for surgery. Prayers and a heavy dose of faith got me through it. Hang in there and please feel free to ask me any questions about what to expect in surgery. Hugs ~ Lace